Lexi Clark

LexiClark

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Biography

I race to try and save my life.  I have a fatal genetic disease called GAN.  There are only 63 known cases world-wide.  All of the other kids are in wheel chairs by age 12 but I am lucky because I have a slower progressing form of the disease. Please help save my life!


3

TotalCampaigns

32

DonationCount

$13,774

TotalRaised

MyCampaigns

Event Donors Goal Progress
HRTC Jeff & Brede's Triathlon
June 24, 2018  Mary Jo Peckman Park Katy, TX
10
236%
Raised $7,074 of $3,000
HRTC Jeff & Brede's Triathlon
June 25, 2017  Mary Jo Peckman Park Katy, TX
12
200%
Raised $6,001 of $3,000
Memorial Hermann Sugar Land Triathlon
June 22, 2014  Sugar Land, TX
10
23%
Raised $700 of $3,000