Lagenia Clark

LageniaClark

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Biography

2 of my 3 children were diagnosed with Giant Axonal Neuropathy (GAN) 2.5 years ago.  It is an extremely rare and fatal genetic disease.  Since then I have done everything I can to raise money and awareness to help save their lives.  Pleaes help Lexi (pictured with me), Justin, and the other 61 children worldwide who have this disease.  All of the money raised through Justin's TRIumph over GAN goes to Hannah's Hope Fund the non-profit whose mission is to find a cure for GAN.


40

TotalCampaigns

283

DonationCount

$103,034

TotalRaised

MyCampaigns

Event Donors Goal Progress
Finish Line Sports Turkey Trot
November 26, 2020  Finish Line Sports 13895 SW Freeway Sugar Land, TX 77478
2
51%
Raised $153 of $300
Donate
HMSA Classical 25K, 10 Miler, 5K
November 22, 2020  Anywhere you are
4
143%
Raised $428 of $300
Donate
Cypress Half Marathon, 5K, 1K
November 15, 2020  Anywhere you are
3
305%
Raised $916 of $300
Donate
Vintage Park Half Marathon 5K 1K
April 19, 2020  Houston, TX
6
815%
Raised $8,154 of $1,000
HMSA Classical 25K, 10 Miler, 5K
December 1, 2019  Houston, TX
22
110%
Raised $2,195 of $2,000
Finish Line Sports Turkey Trot
November 28, 2019  Finish Line Sports 13895 SW Freeway Sugar Land, TX 77478
16
254%
Raised $1,270 of $500
Run Houston! University of Houston 10K, 5K, 1K
September 22, 2019  4800 Calhoun Road Houston, TX 77004
11
365%
Raised $3,647 of $1,000
Run Houston! Clear Lake 10K, 5K, 1K
June 2, 2019  Clear Lake, TX
6
57%
Raised $2,840 of $5,000
2019 Houston Racing Sprint Triathlon
May 18, 2019  Katy, TX
6
242%
Raised $2,421 of $1,000
Vintage Park Half Marathon 5K 1K
April 14, 2019  Houston, TX
6
451%
Raised $4,510 of $1,000
Run Houston! Minute Maid Park 10K, 5K, 1K
March 23, 2019  Houston, TX
12
94%
Raised $1,885 of $2,000
The Woodlands Marathon, Half, 5K and 2K
February 23 - March 2, 2019  The Woodlands, TX
15
234%
Raised $11,706 of $5,000
Finish Line Sports Turkey Trot
November 22 - 29, 2018  Sugar Land, TX
14
187%
Raised $3,276 of $1,750
HRTC Jeff & Brede's Triathlon
June 24, 2018  Mary Jo Peckman Park Katy, TX
4
250%
Raised $5,000 of $2,000
Run Houston! Clear Lake 10K, 5K, 1K
June 3, 2018  Clear Lake, TX
5
64%
Raised $1,917 of $3,000
The Woodlands Marathon, Half, 5K and 2K
February 24 - March 3, 2018  The Woodlands, TX
21
132%
Raised $6,610 of $5,000
Rudolph Fun Run
December 9, 2017  Houston, TX
6
590%
Raised $2,950 of $500
Finish Line Sports Turkey Trot
November 23, 2017  Sugar Land, TX
13
149%
Raised $1,488 of $1,000
Oktoberfest Triathlon
October 8, 2017  Fulshear, TX
6
142%
Raised $2,850 of $2,000
Houston Texans Kids Triathlon
May 20 - 21, 2017  NRG
0
0%
Raised $0 of
Vintage Park Half Marathon, 5K, 1K
April 9, 2017  Houston, TX
5
192%
Raised $3,850 of $2,000
The Woodlands Marathon, Half, 5K and 2K
March 3 - 4, 2017  The Woodlands, TX
17
141%
Raised $7,071 of $5,000
Run Houston! Sam Houston Race Park 10K, 5K, 1K
January 1, 2017  Houston, TX
3
25%
Raised $250 of $1,000
Rudolph Fun Run
December 10, 2016  Houston, TX
20
620%
Raised $3,100 of $500
Run Houston! Sugar Land 10K, 5K, 1K
December 3, 2016  Sugar Land, TX
6
133%
Raised $1,327 of $1,000
Finish Line Sports Turkey Trot
November 24, 2016  Sugar Land, TX
5
130%
Raised $650 of $500
Try Andy's Tri
October 16, 2016  Sugar Land, TX
0
0%
Raised $0 of $100
Oktoberfest Triathlon
October 9, 2016  Fulshear, TX
1
10%
Raised $100 of $1,000
Towne Lake Olympic & Sprint Triathlons
September 5, 2016  Towne Lake - Houston, Texas
4
90%
Raised $900 of $1,000
Cypress Triathlon Weekend Sprint Tri, Youth Tri , Doggie Splash 'N Dash, Trail Run, Mountain Bike
July 31, 2016  Cypress, Texas
6
174%
Raised $3,480 of $2,000
Shadow Creek Triathlon
July 10, 2016  Houston, TX
0
0%
Raised $0 of
Houston Texans Kids Triathlon
April 23 - 24, 2016  NRG Stadium
0
0%
Raised $0 of $1,000
Run Houston! Minute Maid Park 10K, 5K, 1K
March 19, 2016  Houston, TX
0
0%
Raised $0 of $1,000
Katy Half Marathon 5K 1K
February 6, 2016  Katy, TX
7
110%
Raised $2,200 of $2,000
Finish Line Sports Turkey Trot
November 26, 2015  Sugar Land, TX
10
438%
Raised $2,191 of $500
Cypress Triathlon Weekend Youth, Doggie, Sprint
July 26, 2015  Cypress, Texas
3
114%
Raised $2,285 of $2,000
Memorial Hermann Sugar Land Triathlon
May 3, 2015  Sugar Land, TX
1
2%
Raised $100 of $5,000
Kemah Triathlon Weekend Olympic, Sprint & 5K
April 11 - 12, 2015  Kemah, TX
6
123%
Raised $6,125 of $5,000
The Woodlands Marathon, Half, 5K and 2K
February 27 - 28, 2015  The Woodlands, TX
9
48%
Raised $2,389 of $5,000
Finish Line Sports Turkey Trot
November 27, 2014  Sugar Land, TX
2
93%
Raised $2,800 of $3,000