Courtney West

CourtneyWest

MyReason

The Will Herndon Research Fund at Beyond Batten Disease Foundation

 

ABOUT THE WILL HERNDON RESEARCH FUND     

The Fund was established in 2009 by Missy and Wayne Herndon, in honor of their son Will, who was diagnosed with juvenile Batten disease at the age of 6.  This rare, fatal, genetic disease attacks an otherwise healthy child, beginning with vision loss, declining cognitive skills and seizures.  Batten disease is fatal, most often by the late teens or early twenties.  Our goal is to SAVE WILL, and the hundreds of other children stricken with juvenile Batten disease.  We have HOPE, but we need your help in this race against time.  To learn more or to get involved, call 832-610-5995, or visit willherndon.org.  

ABOUT BEYOND BATTEN DISEASE FOUNDATION

Beyond Batten Disease Foundation (BBDF) is the world’s largest nonprofit organization dedicated to funding research for a treatment and cure for juvenile (CLN3) Batten Disease. Since its inception in 2008, over $16 million has been invested in research by leveraging donations, co-funding and strategic partnerships. BBDF is spearheading a unique, cohesive strategy, incorporating independent scientific resources and collaboration with related organizations to drive research in juvenile Batten Disease. Today there is a treatment in sight. BBDF funded research has discovered a drug that slows the progression of the disease in Batten models. The foundation has launched a 24 month $6 million campaign to advance the treatment to clinical trials. More information can be found at www.beyondbatten.org. 

 

Biography

My Reason2Race is The Will Herndon Research Fund at Beyond Batten Disease Foundation


1

TotalCampaigns

8

DonationCount

$485

TotalRaised

MyCampaigns

Event Donors Goal Progress
The Woodlands Marathon, Half, 5K and 2K
February 27 - 28, 2015  The Woodlands, TX
8
48%
Raised $485 of $1,000