TotalRaised

$13,536

OurGoal

$10,000


Goal Progress
135%
View Team Donate

OurReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

281-830-5411

lageniac@comcast.net

Towne Lake Olympic & Sprint Triathlons
 Cypress, TX
August 31 - September 1, 2014

Team Name

Total Raised

Participants

Jared Clark

Jared Clark

 
88%
Raised $8,755
Goal $10,000
Richard Balbin

Richard Balbin

 
514%
Raised $2,569
Goal $500
Nicholas Balbin

Nicholas Balbin

 
221%
Raised $2,213
Goal $1,000
blaise tsai

blaise tsai

 
0%
Raised $0
Goal