TotalRaised

$12,575

OurGoal

$10,000


Goal Progress
126%
View Team Donate

OurReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

281-830-5411

lageniac@comcast.net

Memorial Hermann Sugar Land Triathlon
 Sugar Land, TX
June 22, 2014

Team Name

Total Raised

Participants

Jared Clark

Jared Clark

 
139%
Raised $6,952
Goal $5,000
Afton Widdershins

Afton Widdershins

 
481%
Raised $4,813
Goal $1,000
Lexi Clark

Lexi Clark

 
23%
Raised $700
Goal $3,000
Ian Chandler

Ian Chandler

 
8%
Raised $80
Goal $1,000
Rhonda Dean

Rhonda Dean

 
10%
Raised $30
Goal $300
Christine Dodson

Christine Dodson

 
0%
Raised $0
Goal
Melissa Leccese

Melissa Leccese

 
0%
Raised $0
Goal $500