TotalRaised

$21,030

OurGoal

$30,000


Goal Progress
70%
View Team Donate

OurReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

281-830-5411

lageniac@comcast.net

Kemah Triathlon Weekend Olympic, Sprint & 5K
 Kemah, TX
April 11 - 12, 2015

Team Name

Total Raised

Participants

Jared Clark

Jared Clark

 
65%
Raised $6,538
Goal $10,000
Lagenia Clark

Lagenia Clark

 
123%
Raised $6,125
Goal $5,000
Sara Binau

Sara Binau

 
243%
Raised $3,640
Goal $1,500
Jennifer Draper

Jennifer Draper

 
335%
Raised $3,347
Goal $1,000
Philip Davis

Philip Davis

 
0%
Raised $630
Goal
Hubert Ho

Hubert Ho

 
100%
Raised $500
Goal $500
Greg Hester

Greg Hester

 
50%
Raised $250
Goal $500