TotalRaised

$27,626

OurGoal

$25,000


Goal Progress
111%
View Team Donate

OurReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

281-830-5411

lageniac@comcast.net

Kemah Triathlon Weekend Olympic, Sprint & 5K
 Kemah, TX
April 27, 2014

Team Name

Total Raised

Participants

Charles Harris

Charles Harris

 
0%
Raised $18,155
Goal
Sara Binau

Sara Binau

 
135%
Raised $2,025
Goal $1,500
Maenad Widdershins

Maenad Widdershins

 
176%
Raised $1,755
Goal $1,000
Christine Dodson

Christine Dodson

 
170%
Raised $1,700
Goal $1,000
Jennifer Draper

Jennifer Draper

 
141%
Raised $1,411
Goal $1,000
Hubert Ho

Hubert Ho

 
0%
Raised $1,405
Goal
Monique Boling

Monique Boling

 
0%
Raised $875
Goal $0
Lagenia Clark

Lagenia Clark

 
30%
Raised $300
Goal $1,000
Greg Hester

Greg Hester

 
0%
Raised $0
Goal