TotalRaised

$1,225

OurGoal

$50,000


Goal Progress
2%
View Team Donate

OurReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

281-830-5411

lageniac@comcast.net

Hannah's Hope Run for Life 5K Trail Run
 Indian Meadows Park, Glenville, NY 12302
October 4, 2014

Team Name

Total Raised

Participants

Steven Eichorn

Steven Eichorn

 
82%
Raised $825
Goal $1,000
Karl Blodgett

Karl Blodgett

 
50%
Raised $125
Goal $250
Teresa Zieinski

Teresa Zieinski

 
0%
Raised $100
Goal
Kevin Creagan

Kevin Creagan

 
10%
Raised $100
Goal $1,000
Hannah Sames

Hannah Sames

 
30%
Raised $75
Goal $250