TotalRaised

$30

OurGoal

$2,000


Goal Progress
2%
View Team Donate

OurReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

281-830-5411

lageniac@comcast.net

Emily's Spin-a-thon for GAN
 My Indoor Cycle, Houston, TX 77098
July 19, 2014

Team Name

Total Raised

Participants

Emily Pare

Emily Pare

 
2%
Raised $30
Goal $2,000