TotalRaised

$9,507

OurGoal

$10,000


Goal Progress
95%
View Team Donate

OurReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

281-830-5411

lageniac@comcast.net

Cypress Triathlon Weekend Youth, Doggie, Sprint
 Cypress, Texas
August 3, 2014

Team Name

Total Raised

Participants

Jared Clark

Jared Clark

 
110%
Raised $5,500
Goal $5,000
Nicholas Balbin

Nicholas Balbin

 
0%
Raised $1,505
Goal
Richard Balbin

Richard Balbin

 
0%
Raised $873
Goal
Ric Davis

Ric Davis

 
158%
Raised $791
Goal $500
Philip Davis

Philip Davis

 
138%
Raised $690
Goal $500
Theresa Balbin

Theresa Balbin

 
0%
Raised $148
Goal