AboutUs

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Learn more at www.hannahshopefund.org

 Join Us

  • Step 1

    Register for your event. Consider one of our our Program Partner events here.

  • Step 2

    Click Join Team to set up your campaign for your selected event.

  • Step 3

    Share your campaign with everyone you know.

Tax ID: 45-0593226

19 Blue Jay Way Rexford, NY 12148

281-830-5411

lageniac@comcast.net

98

Events

130

TeamMembers

$700,702

TotalRaised

UpcomingEvents

Event TotalRaised TeamMembers
April 20, 2015
 Boston
$2,125 1
May 3, 2015
 Sugar Land, TX
$14,393 8
July 26, 2015
 Cypress, Texas
$12,515 6
August 15, 2015
 The Mill, 2121 Route 9, Round Lake, NY
$21,986 1
August 30, 2015
 Shenendehowa High School 970 Rt. 146, Clifton Park NY
$1,120 1
September 6 - 7, 2015
 Cypress, TX
$8,497 7
September 27, 2015
 Katy, TX
$3,550 1
October 3, 2015
 Lake Jackson, Texas
$480 3
November 26, 2015
 Sugar Land, TX
$7,662 3
February 6, 2016
 Katy, TX
$6,390 3
March 19, 2016
 Houston, TX
$6,670 6
April 23 - 24, 2016
 Kemah, TX
$19,529 4
April 23 - 24, 2016
 NRG Stadium
$533 2
June 5, 2016
 Clear Lake, TX
$4,851 2
July 10, 2016
 Houston, TX
$765 2