AboutUs

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Learn more at www.hannahshopefund.org

 Join Us

  • Step 1

    Register for your event. Consider one of our our Program Partner events here.

  • Step 2

    Click Join Team to set up your campaign for your selected event.

  • Step 3

    Share your campaign with everyone you know.

Tax ID: 45-0593226

19 Blue Jay Way Rexford, NY 12148

281-830-5411

lageniac@comcast.net

95

Events

130

TeamMembers

$685,960

TotalRaised

UpcomingEvents

Event TotalRaised TeamMembers
April 13, 2014
 Houston, Texas
$6,138 12
April 27, 2014
 Kemah, TX
$27,626 9
May 3, 2014
 The Woodlands, TX
$455 1
June 22, 2014
 Bellaire, TX
$3,295 1
June 22, 2014
 Sugar Land, TX
$12,575 7
July 19, 2014
 My Indoor Cycle, Houston, TX 77098
$30 1
August 3, 2014
 Cypress, Texas
$9,507 6
August 31 - September 1, 2014
 Cypress, TX
$13,536 4
September 13, 2014
 Galveston
$1,215 1
October 4, 2014
 Indian Meadows Park, Glenville, NY 12302
$1,225 5
October 12, 2014
 Washington D.C.
$910 2
November 27, 2014
 Sugar Land, TX
$10,991 3
February 27 - 28, 2015
 The Woodlands, TX
$48,555 11
April 11 - 12, 2015
 Kemah, TX
$21,030 7
April 19, 2015
 University of Houston, Houston, TX
$1,728 4