AboutUs

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Learn more at www.hannahshopefund.org

 Join Us

  • Step 1

    Register for your event. Consider one of our our Program Partner events here.

  • Step 2

    Click Join Team to set up your campaign for your selected event.

  • Step 3

    Share your campaign with everyone you know.

Tax ID: 45-0593226

19 Blue Jay Way Rexford, NY 12148

281-830-5411

lageniac@comcast.net

94

Events

130

TeamMembers

$687,313

TotalRaised

UpcomingEvents

Event TotalRaised TeamMembers
April 19, 2020
 Houston, TX
$1,354 1 JoinTeam
May 31, 2020
 Clear Lake, TX
$0 0 JoinTeam
June 7, 2020
 La Porte, TX 77571
$0 0 JoinTeam
June 20, 2020
 Houston, TX
$0 0 JoinTeam
July 25 - 26, 2020
 Cypress, TX
$0 0 JoinTeam
November 26, 2020
 Finish Line Sports 13895 SW Freeway Sugar Land, TX 77478
$0 0 JoinTeam