AboutUs

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Learn more at http://www.hannahshopefund.org/

 Join Us

  • Step 1

    Learn about us.

  • Step 2

    Register for your event. Consider one of our partner program events here.

  • Step 3

    Join our team for your selected event.

Tax ID: 45-0593226

19 Blue Jay Way Rexford, NY 12148

281-830-5411

lageniac@comcast.net

59

Events

99

TeamMembers

$478,735

TotalRaised

UpcomingEvents

Event TotalRaised TeamMembers
October 15, 2017
 Louisville, KY
$2,594 1
November 11, 2017
 Richmond, VA
$0 0 JoinTeam
November 12, 2017
 Cypress, Texas
$4,100 1 JoinTeam
November 23, 2017
 Sugar Land, TX
$1,300 2 JoinTeam
November 26, 2017
 Houston, TX
$1,200 1 JoinTeam
December 2, 2017
 Sugar Land, TX
$1,800 2 JoinTeam
December 9, 2017
 Houston, TX US 77024
$800 1 JoinTeam
December 9 - 10, 2017
 Cypress, TX
$1,150 1 JoinTeam
March 3, 2018
 The Woodlands, Texas
$0 0 JoinTeam