AboutUs

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Learn more at www.hannahshopefund.org

 Join Us

  • Step 1

    Register for your event. Consider one of our our Program Partner events here.

  • Step 2

    Click Join Team to set up your campaign for your selected event.

  • Step 3

    Share your campaign with everyone you know.

Tax ID: 45-0593226

19 Blue Jay Way Rexford, NY 12148

281-830-5411

lageniac@comcast.net

84

Events

129

TeamMembers

$666,747

TotalRaised

UpcomingEvents

Event TotalRaised TeamMembers
September 22, 2019
 4800 Calhoun Road Houston, TX 77004
$0 0 JoinTeam
December 7, 2019
 Run Houston! Sugar Land 10K, 5K, 1K
$0 0 JoinTeam