AboutUs

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Learn more at www.hannahshopefund.org

 Join Us

  • Step 1

    Learn about us.

  • Step 2

    Register for your event. Consider one of our partner program events here.

  • Step 3

    Join our team for your selected event.

Tax ID: 45-0593226

19 Blue Jay Way Rexford, NY 12148

281-830-5411

lageniac@comcast.net

75

Events

118

TeamMembers

$586,298

TotalRaised

UpcomingEvents

Event TotalRaised TeamMembers
September 2 - 3, 2018
 Towne Lake, Cypress TX
$222 1 JoinTeam
September 23, 2018
 Houston, TX
$0 0 JoinTeam
October 7, 2018
 Fulshear, TX
$0 1 JoinTeam
October 20 - 21, 2018
 Kemah, TX
$0 1 JoinTeam
November 11, 2018
 Cypress, TX
$0 0 JoinTeam
November 22, 2018
 Sugar Land, TX
$0 1 JoinTeam
November 25, 2018
 Houston, TX
$0 1 JoinTeam
December 1, 2018
 Sugar Land, TX
$0 0 JoinTeam