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The Will Herndon Research Fund at Beyond Batten Disease Foundation



The Fund was established in 2009 by Missy and Wayne Herndon, in honor of their son Will, who was diagnosed with juvenile Batten disease at the age of 6.  This rare, fatal, genetic disease attacks an otherwise healthy child, beginning with vision loss, declining cognitive skills and seizures.  Batten disease is fatal, most often by the late teens or early twenties.  Our goal is to SAVE WILL, and the hundreds of other children stricken with juvenile Batten disease.  We have HOPE, but we need your help in this race against time.  To learn more or to get involved, call 832-610-5995, or visit  


Beyond Batten Disease Foundation (BBDF) is the world’s largest nonprofit organization dedicated to funding research for a treatment and cure for juvenile (CLN3) Batten Disease. Since its inception in 2008, over $16 million has been invested in research by leveraging donations, co-funding and strategic partnerships. BBDF is spearheading a unique, cohesive strategy, incorporating independent scientific resources and collaboration with related organizations to drive research in juvenile Batten Disease. Today there is a treatment in sight. BBDF funded research has discovered a drug that slows the progression of the disease in Batten models. The foundation has launched a 24 month $6 million campaign to advance the treatment to clinical trials. More information can be found at 



The Woodlands Marathon, Half, 5K and 2K
 The Woodlands, TX
March 3 - 4, 2017

Join team HOPE by following the 3 steps below:

  1. Register for the event HERE
  2. Craft your story on a free Reason2Race donation page by clicking HERE
  3. Share your story with family and friends!

There is no fundraising minimum to participate, and we encourage you to set a high goal, at least $1,000. You have nothing to lose and so much to gain. The Woodlands Marathon Management awards the following additional donations to the nonprofits of the highest athlete fundraisers.

$15,000 in additional prize donations to win

  • 1st place athlete fundraiser wins $4,000 for his/her cause
  • 2nd place athlete fundraiser wins $3,000 for his/her cause
  • 3rd place athlete fundraiser wins $2,000 for his/her cause
  • 4th place athlete fundraiser wins $1,000 for his/her cause
  • 5th - 8th place athlete fundraisers win $500 for their causes
  • 9th - 20th place athlete fundraisers win $250 for their causes

Contact us if you have questions. Go Team!

Team Name

Total Raised


Erin Overholt

Erin Overholt

Raised $1,225
Goal $1,200
Angela Banzhaf

Angela Banzhaf

Raised $0
Goal $500