Taylor Vondenstein

Taylor
Vondenstein

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TotalRaised

$1,940

MyGoal

$1,000


Goal Progress
194%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Run Houston! Minute Maid Park 10K, 5K, 1K
 Houston, TX
March 19, 2016

We are helping our friends conquer a devastating nerological disease.

Donations2Date: $1,940

Donor Donation Amount Donation Date Comment
Bridgeway Run Houston $500.00* 3/22/2016 Congratulations and thank you for participating in the Bridgeway Run Houston! For A Cause.
Anonymous Donor $30.00* 3/17/2016
Susan Wright $50.00* 3/8/2016 In honor of Chrissy
Anita Seline $25.00* 2/28/2016
Tracey Giroux $335.00* 2/15/2016 Your Hornet Family
Kakaty Tyco Charitable Foundation $1,000.00* 2/9/2016
* offline donation