Sara Binau

Sara
Binau

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TotalRaised

$2,202

MyGoal

$500


Goal Progress
440%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Run Houston! Sugar Land 10K, 5K, 1K
 Sugar Land, TX
December 3, 2016

I run for Justins' TRIumph to try and save Justtin and Lexi's lives! Their mom is one of my 4 workout partners.

Donations2Date: $2,202

Donor Donation Amount Donation Date Comment
Bridgeway Run Houston $150.00* 12/15/2016 Congratulations and thank you for participating in Bridgeway Run Houston! For A Cause.
Anonymous Donor $1,002.00* 11/29/2016
Tara Sullivan $100.00* 11/28/2016
Anonymous Donor $500.00* 11/28/2016
Paul & Stacy Youngdale $400.00* 11/19/2016 Includes match from B of A.
Paul Arlinghaus $50.00* 11/19/2016
* offline donation