Sara Binau

Sara
Binau

View Profile


TotalRaised

$675

MyGoal

$1,000


Goal Progress
68%
Make a Donation

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Finish Line Sports Turkey Trot
November 26, 2015
 Sugar Land, TX
Please consider sponsoring me a dollar amount per mile that I will be running for Team Justin's TRIumph.  Both Lexi and Justin were diagnosed with GAN, a fatal disease a little over 2 years ago.  Please sponsor me so they can continue to walk and run!

Donations2Date: $675

Donor Donation Amount Donation Date Comment
Finish Line Sports $100.00* 11/26/2015 Congratulations and thank you for participating in the Finish Line Sports Charity Challenge.
sara binau $500.00* 11/25/2015 So proud of Kate for running her 1st 5 mile race!
Paul Cali $75.00* 11/23/2015
* offline donation