Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide. GAN is an extremely rare and fatal genetic disease. There are only 63 known cases world-wide. The life expectancy for these children is only into their 20's. In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected. Help us raise money to continue our search for a cure for GAN.
|Donor||Donation Amount||Donation Date||Comment|
|Linda Reiger||$30.00||5/21/2014||Thank you Rhonda for supporting GAN and bringing this very rare and devastating condition to the attention of your FB followers. Wishing you Good Luck as you participate in the Triathlon - I know you are training hard - am so proud of you!|
|* offline donation|