Rhonda
Dean

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TotalRaised

$30

MyGoal

$300


Goal Progress
10%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Memorial Hermann Sugar Land Triathlon
June 22, 2014
 Sugar Land, TX

Hello friends and family!  I will be doing a triathlon June 22 in sugarland.  I will be helping a great family raise money for two of their children afflicted with a horrible disease.   Hoping for a cure for GAN.  Justin and Lexi's  brother will also be participating!  Please click on the links and read about what this family is up against.  I've set my fundraising at 300.  Surely I can raise that by June 22.

Donations2Date: $30

Donor Donation Amount Donation Date Comment
Linda Reiger $30.00 5/21/2014 Thank you Rhonda for supporting GAN and bringing this very rare and devastating condition to the attention of your FB followers. Wishing you Good Luck as you participate in the Triathlon - I know you are training hard - am so proud of you!
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