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Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.


Memorial Hermann Sugar Land Triathlon
 Sugar Land, TX
June 22, 2014
This year's Sugar Land Sprint Triathlon will be extra special because I will be on a team with my sister and my niece, Lexi.  Lexi has a progressive and life-threatening disease called Giant Axonal Neuropathy (GAN).  Lexi's symptoms are mild and she can swim, bike, run, and play like other kids.  Lexi's older brother, Justin's symptoms are more progressed and he has difficulty walking and with fine motor movements.  Hannah's Hope fund is on the verge of discovering a cure and funds are needed to begin clinical trials.  Please support Hannah's Hope Fund and support Justin and Lexi's TRIumph over GAN.

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