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Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.


The Woodlands Marathon, Half, 5K and 2K
February 27 - 28, 2015
 The Woodlands, TX

The Clark family is a longtime friend of ours! Justin's twin brother Jared and Katelyn have raced together for several years. A few years ago, both Jared and Katelyn teamed up to complete the Oilman 70.3! I will be running The Woodlands Half Marathon and Katelyn will be running the 5K race to help raise money to help the Clark family end GAN! Please help this family in finding a cure for both Justin and Lexi. Any amount will be greatly appreciated and will help tremendously! Thanks so much!

Donations2Date: $2,345

Donor Donation Amount Donation Date Comment
The Woodlands Marathon Management $500.00* 3/13/2015 Congratulations and thank you for participating in The Woodlands Marathon Charity Challenge.
Patricia Carmel $100.00* 2/8/2015
Jessica Baxter $25.00 2/1/2015 Your hearts are so big! Proud to know you both!
Jennifer Reyes $20.00 1/29/2015
BETH Silaika $1,500.00* 1/26/2015
Cheveron Matching $200.00* 11/4/2014
* offline donation