Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide. GAN is an extremely rare and fatal genetic disease. There are only 63 known cases world-wide. The life expectancy for these children is only into their 20's. In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected. Help us raise money to continue our search for a cure for GAN.
I’m so excited, that on Thursday November 26, I will be participating in the 35th Annual SUGAR LAND TURKEY TROT event, for a specific cause. I have chosen Hannah's Hope Fund! I love how they are making a difference in our community and raising money to find a cure for GAN, a very rare genetic mutation called Giant Axonal Neuropathy. Unfortunately, GAN comes with a fatal diagnosis (which is why it’s mostly kids and a few young adults who have it).
The biggest challenge with research is that there is no Federal Funding for this disease because it isn’t an epidemic. There are no celebrities or telethons raising public awareness. In fact, there is only one charity, Hannah’s Hope Fund, which is raising money to fight this disease. It was started when the parents of a sixteen year old girl named Hannah found out she had GAN. Over the past 5 years they have raised significant money for research, but they need more.
Please take a moment to prayerfully consider making a donation to support my fundraising efforts.
Hannah's Hope needs your support, because of the COVID-19 pandemic the fundraising gala and other events had to be cancelled.
Please contribute to our cause. Any amount would be great: $10, $20, $50, $100 or other.
I would also love to have as part of team Hannah's Hope, but let me encourage you to not wait. Just ask me how to join my team.
Thank you for your support. It means more to me than I can express in words.
Please forward this to anyone who you think might want to donate or join our team.
With lot's of gratitude - Maria Estrella
|Donor||Donation Amount||Donation Date||Comment|
|Finish Line Sports||$200.00*||11/26/2020||Congratulations and thank you for participating in the Finish Line Sports Charity Challenge.|
|Sandra Cordova||$100.00||11/14/2020||Hola amiga! Muy contenta de poder apoyar tu causa. Buena suerte en la carrera, espero logres tu meta! Te quiero mucho, saludos a tu linda familia!|
|Erica Mesusan||$200.00||11/14/2020||Go Maria!|
|Anonymous Donor||$100.00||11/11/2020||You Go Girl!!!|
|* offline donation|