Maenad
Widdershins

View Profile


TotalRaised

$4,868

MyGoal

$1,000


Goal Progress
487%
Make a Donation

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

The Woodlands Marathon, Half, 5K and 2K
February 27 - 28, 2015
 The Woodlands, TX
This will be my first marathon.  I have been training since May.  I have had a marathon on my bucket list for many years, even when I was unable to run a mile.  I can't think of anyone I would rather dedicate this race too than Justin, Lexi and a cure for GAN.

Donations2Date: $4,868

Donor Donation Amount Donation Date Comment
Norman Levy $1,500.00* 12/22/2015
The Woodlands Marathon Management $500.00* 3/13/2015 Congratulations and thank you for participating in The Woodlands Marathon Charity Challenge.
R. Manning $600.00* 2/11/2015
Patricia Veronezi $150.00* 2/7/2015
Richard Cuscino $118.00* 2/5/2015
Jane Percival $500.00* 1/23/2015
Daniel Glaser $1,500.00* 1/15/2015
* offline donation