Lexi Clark

Lexi
Clark

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TotalRaised

$700

MyGoal

$3,000


Goal Progress
23%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Memorial Hermann Sugar Land Triathlon
June 22, 2014
 Sugar Land, TX

I'm Lexi and I just turned 9. I am literally racing for my life. I have a fatal disease that will eventually take away my ability to swim, bike and run. But I am not giving up. I will be doing an adult sprint triathlon this Sunday on a relay team with my mom and my aunt Melissa.

I am so excited to do the 300 m pool swim for my portion of the race. My mom will do the bike ride and my aunt (who is flying down from Maryland to race with me ) will run the 5K.  I can't wait to cross the finish line with her!

 Please click on the video link to the left to learn more about my disease.

 

Donations2Date: $700

Donor Donation Amount Donation Date Comment
Anonymous Donor $50.00 6/26/2014 HOUSTON RACING TRIATHLON CLUB congratulates you on your race!!
Jeff Guilbert $50.00 6/20/2014 Way to go Lexie!
Rita Widener $25.00 6/19/2014 Go Lexi!!!
Tom Smith $50.00* 6/16/2014
Andy Chan $50.00* 6/14/2014 Sent to HHF, don't have address of check so used mine
Barb Ostdiek $150.00* 4/27/2014
Clay Wick $100.00* 4/27/2014
Haley Ueckert $25.00* 4/27/2014
Hsin-Jung Tsai $100.00* 4/25/2014
G.C. Roman $100.00* 4/22/2014
* offline donation