Lagenia Clark

Lagenia
Clark

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TotalRaised

$2,389

MyGoal

$5,000


Goal Progress
48%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

The Woodlands Marathon, Half, 5K and 2K
February 27 - 28, 2015
 The Woodlands, TX
Justin (age 14) and his little sister Lexi (age 9) are my children and they both suffer from GAN.  Justin's twin brother, Jared, has completed over 50 adult multi-sport races including Oilman 70.3 at age 12.  He will also be running in the Woodlands 1/2 marathon.

Donations2Date: $2,389

Donor Donation Amount Donation Date Comment
The Woodlands Marathon Management $500.00* 3/13/2015 Congratulations and thank you for participating in The Woodlands Marathon Charity Challenge.
Ruth Tietz $240.00* 2/14/2015
John Kern $150.00* 2/7/2015
Timothy Mott $150.00* 2/6/2015
Michael O'Toole III $300.00* 1/28/2015
Beekmantown School $218.75* 1/8/2015
Emily Hartzog $50.00* 12/17/2014 Go Clarks
Charles and Barbara Fisher $480.00* 12/12/2014 Praying for a Cure!
Congregation Brith Shalom $300.00* 11/28/2014 Go Justin's TRIumph over GAN
* offline donation