Lagenia Clark

Lagenia
Clark

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TotalRaised

$11,987

MyGoal

$3,000


Goal Progress
400%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Run Houston! University of Houston Presented by Norton Rose Fulbright 10K, 5K, 1K
 4800 Calhoun Road Houston, TX 77004
September 19 - October 31, 2021

I run to try and find a cure for GAN

Donations2Date: $11,987

Donor Donation Amount Donation Date Comment
Alexandria Seavey $800.00 9/28/2021 Congratulations! Thank you for participating in the Run Houston! For A Cause program.
Anonymous Donor $9,000.00* 9/18/2021
Anonymous Donor $20.00 9/11/2021
Anonymous Donor $50.00 8/31/2021 Praying for you & your family. Bless you and may the Lord supply your every need.
Maria Jose Estrella $30.00 8/31/2021 Thank you for the new bike gear
Jessica Covey $420.00* 8/13/2021
Mikael Neist $362.00* 8/13/2021
Aryn McComber $265.00* 8/13/2021
Debbie Sue $70.00* 8/13/2021
Gunnar Birkeland $970.00* 8/13/2021
* offline donation