Lagenia Clark

Lagenia
Clark

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TotalRaised

$2,840

MyGoal

$5,000


Goal Progress
57%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Run Houston! Clear Lake 10K, 5K, 1K
 Clear Lake, TX
June 2, 2019

I run to raise money to save my children's lives.  2 of them have GAN, an ultra-rare fatal genetic disease.

 

Donations2Date: $2,840

Donor Donation Amount Donation Date Comment
leanne schneider $2,000.00* 6/1/2019
Michael Mousseau $190.00* 6/1/2019
Tim Nielsen $50.00* 6/1/2019
Ankur Kamdar $50.00* 6/1/2019
Linda Barcot $50.00 5/26/2019
Emergency Medical Group $500.00* 5/17/2019
* offline donation