Kirstin Erni


View Profile





Goal Progress
Make a Donation


Cholangiocarcinoma Foundation

The Cholangiocarcinoma Foundation is the only non-profit organization in North America exclusively dedicated to finding a cure and improving the quality of life for those affected by cholangiocarcinoma (bile duct cancer). Approximately 10,000 people in the United States are diagnosed each year with this hard-to-diagnose, difficult-to-treat, fatal type of cancer. Cholangiocarcinoma is a rare but deadly cancer that has very little name recognition or awareness. Due to this lack of visibility, it is often overlooked as symptoms can mimic those of other illnesses and diagnosis comes too late. Conventional cancer treatments remain ineffective against cholangiocarcinoma, and most people diagnosed with advanced disease have less than a 5% chance of surviving at least five years. While almost 2 out of 3 people with bile duct cancer are 65 or older, people of nearly any age can be diagnosed. There has been an alarming increase in the past decade of young individuals being diagnosed in their 20’s, 30’s or 40’s.

Your support of TeamCCF will significantly enhance awareness and recognition of bile duct cancer and raise critical funds for research, outreach and education to serve all those affected by cholangiocarcinoma.


Chicago Half Marathon, 5k
September 29, 2019
 Jackson Park, Chicago, Illinois

On September 29th, 2019 I will be running the Chicago Half Marathon. I never thought that I would hear myself say those words, but now I have a reason and a special person to run for. My mom and best friend was taken from our family way too soon on Christmas Eve of 2018. When she was diagnosed with bile duct cancer on December 5th, 2018, she was ready to fight. Sadly, no matter how determined she was, she did not have a fighting chance. We watched our amazing mother, wife, daughter, sister, aunt, and friend fight until the very end. She never once gave up, and in the end, she did win because she never let this monster take away her hope and determination. Even a couple of days before she died, she told my Aunt and I that she would be living at least another twenty years. To her, she was never going to die, and I love that she never let cancer win. No one deserves to go through this and I never want another family to have to go through what ours has experienced. We will forever miss my travel, beach, wine, and family loving mom. She loved everyone and was always there when you needed her the most. She had the most contagious laugh and always had a hug ready for you. You can ask anyone who came in contact with her – she was an amazing soul.

When I found this opportunity to raise awareness for this terrible disease, I knew that I had to do it. It is a way to honor an amazing person and it takes us one step closer to helping aide research for this rare cancer. It will never be fair that we had to go through this. My mom and our family did not deserve this and neither does anyone else who has to bury their loved one because of Cholangiocarcinoma. But together we can honor our loved ones and keep their memories alive. We will fight for them since they can no longer fight for themselves. Together we will raise awareness so that more people understand this rare cancer that is affecting families each and every day.

As I spend these next few months training and raising money for research, I will always have my mom pushing me through the physical and emotional pain. I know that she will be with me every step of the way and she will be pushing me with her encouraging words and witty personality. If she could fight this terrible disease until the very end, the least I can do is run 13.1 miles. I will be training in her running shoes, listening to her favorite music, and I will have her smiling face cheering me on. I know that this will never bring her back, but it will help me honor her and keep her story and her memory alive. I want everyone to know the amazing person she is, and I don’t want her story to ever end. One of her famous last phrases was, “We’ve got this guys!” and don’t worry mom I’ve got this, and I promise that I will make you proud. We all love you and we all miss you so now we will all honor you.

Thank you to everyone who has been by our side through this journey. Through the tears, laughter, and scariest moments we are making it because of you! We feel the love and it is so incredible. Life without my mom has not been easy but because of all of you I have found the hope to keep moving forward and honoring her amazing soul. Thank you from the bottom of my heart. Seeing all of the love and support has brought so much joy after such tragedy.

Love to all!

Donations2Date: $8,350

Donor Donation Amount Donation Date Comment
James Arlen $50.00 9/29/2019
Lindsey Christen $200.00 9/27/2019
Paul Hansen $100.00 9/27/2019
Braeden Tucker $22.00 9/27/2019 Beth and I couldn’t be more proud of you! $8,000 looks like a nice number - Braeden
Fiona Royer $50.00 9/27/2019 You and your mother are an inspiration to us all - The Royers xx
Christina Wold $50.00 9/27/2019 Way to go! From Lucas Levi (and his parents!)
John Fulkerth $25.00 9/27/2019 You Go Girl!!
Laura Jarchow $50.00 9/26/2019 What a great way to honor your Mom! She is so proud.
Regan Shaw $25.00 9/25/2019 You got this Kirstin!
Carly Signorello $25.00 9/25/2019 Love you Erni fam! - Carly and Ray
Lauren Nordholm $50.00 9/25/2019 You rock, Ms. Kiki!! We love you!!
Caroline DeMario $25.00 9/24/2019 Wishing you all the best this weekend! - Chris, Caroline, and Cam DeMario
Rebecca Pellegrino $52.50 9/24/2019 Big hugs to you, Ms. Kiki! What a wonderful way to remember your mother. - Giovanna and Chiara
Juliana Panagas Lamblin $25.00 9/23/2019 Go, Ms Kiki, Go!! With love and support Adrien Lamblin and Family
Anonymous Donor $50.00 9/23/2019 Much love - Be Well
John Lewandowski $100.00 9/22/2019 You've got this Kirstin!!
Jennifer Frey $50.00 9/22/2019 You’re an inspiration! ??
Sean Erni $50.00 9/20/2019 Love you!!
Stephanie Plein $30.00 9/19/2019
Aaron and Carrie Zaretsky $50.00 9/17/2019
Hannah Mazzie $50.00 9/15/2019 SO proud of you bb!
Shireen Astik $25.00 9/15/2019 Good luck, Ms. Kiki! We will be thinking of you - you got this. Beautiful tribute to your mom. - The Astik Family
Isabella Downes $35.00 9/15/2019 I am so proud of you! You've got this!! <3
Krupali Patel $50.00 9/14/2019 All the best for such a great cause.
Michael Yoch $55.00 9/14/2019 Michael, Kendra, Emelyn, and Alexander wish you luck with your race!
Bess Cades $25.00 9/13/2019
Parker Watt $50.00 9/13/2019 Sending all my best and will be cheering you on!
Kaye Hooks $100.00 9/13/2019 ..In loving memory of my fun loving sister,Mary,on her heavenly birthday! Kirstin, I am so proud of you! You can do it! You’ve got this! Let’s destroy this terrible cancer!
Benjamin Gilbert $25.00 9/12/2019 All our support, good luck. The Gilbert Family
Evan Lieberman $40.00 9/11/2019
Emily Kelly $25.00 9/11/2019 Best of luck, Ms. Kiki! What a great cause. —Nora Kelly & family
Sarah Meiners $25.00 9/11/2019 Good luck in the race and such a nice tribute to your mom. From the Meiners Family
Christina Gallagher $25.00 9/11/2019 Such an amazing way to honor your Mother. Wishing you all the best!
Lesley Hamre $25.00 9/10/2019 Good Luck, Ms. Kiki! The Everts Family
Alexis Hagenson $15.00 9/10/2019
Megan Cohen $50.00 9/10/2019 Good Luck, Ms. Kiki! Love, Stephen, Megan, and Libby Cohen
Emily Little $33.00 9/10/2019 From Zoe Little (Goddard Rhino)
Chandler Hall $25.00 9/10/2019 Thank you, Ms. Kiki, for helping me every morning as I adjusted to school! John Hall
Nancy Griffin $50.00 9/10/2019 Good luck Kiki. You will do great. Such an amazing mission. - The Griffins
Anonymous Donor $100.00 9/9/2019 Way to go, Ms. Kiki! What a beautiful tribute to your mother. We are cheering for you!
Samara Caplan $50.00 9/9/2019 Congrats Ms. Kiki, we're all cheering for you! Love Rose, Teddy, Dan, and Samara Caplan.
Sarah Patel $110.00 9/9/2019
Libby O'Neill $25.00 9/9/2019
Abbey Lichten $50.00 9/9/2019 What a wonderful way to raise awareness and honor your mother. We will be thinking of you and rooting you on! xo, the Jablows
Jason Pullukat $100.00 9/9/2019
Mary Frey $100.00 9/4/2019
Aneri Bhansali $50.00 8/29/2019 Go Ms Kiki go! What a beautiful tribute to your mother. Proud of your dedication. We love you! Love, The Bhansali’s
Kelsey Powell $50.00 8/23/2019 You've got this, Kirs!!
Marian Grout $100.00 8/21/2019 I’ll be thinking you every step of the way, Kirstin. You’re Mom’s strength is within you!
Devon Grout $50.00 8/20/2019
Rosita Cardona $25.00 8/14/2019
Susan Thomas $50.00 8/12/2019 Kiristin~ I’m certain your dad and brother are so very proud of your decision to participate in the half-marathon to help bring awareness and raise money for the research of this horrific disease. Your mom will be beaming with pride and running along your side the whole way. You’ve got this, Kiristin! Sending hugs?? Susan Thomas
shawn Smith $100.00 7/28/2019 Go get em...
Cara Craig $5.00 7/8/2019
Amy Parks $50.00 6/24/2019 Go Kirstin! xxx
Anonymous Donor $75.00 6/18/2019 So proud of you, Ms. Kiki. Love, Alia and Simran
RICHARD C JARCHOW $200.00 6/17/2019 Great idea, your Mom is proud. Rick and Diane
2023 Sawczuk $50.00 6/9/2019
Alicia Ginsburgh $52.50 6/4/2019 We love you Miss Kiki! Love, Evelyn and Cameron Ginsburgh
Anonymous Donor $515.00 6/4/2019 We love you Miss Kiki! - Marie, Johnny, Frankie
Abbey Sherrard $200.00 5/30/2019
Ann Cathcart $100.00 5/24/2019
Hannah Mombach $10.00 5/24/2019
Kevin Heath $100.00 5/18/2019 We'll be cheering!
Clare Heath $21.00 5/18/2019
Molly A. Swart 844 Colonial Court $55.00 5/17/2019 Thinking of you and this wonderful woman and friend.
Anonymous Donor $25.00 5/8/2019
Susan White $100.00 5/6/2019 Happy Training!!!
Meagan Shipley $20.00 5/4/2019
Catherine Schmoyer $25.00 5/3/2019 So proud of you!!!!
Katie Caratelli $50.00 5/2/2019
Mitch Kaufman $25.00 5/1/2019
Deborah Armil $100.00 5/1/2019
Gail Heath $200.00 4/28/2019 Thanks, Kirstin. What a great way to honor your mom! Uncle Paul & Aunt Gail
Gwendoline White $100.00 4/28/2019
Anonymous Donor $27.50 4/28/2019
Liz Conklin $50.00 4/28/2019 Keep it up! So proud of all you have done (:
Marie Sargol $25.00 4/26/2019
Daniel Ross $200.00 4/26/2019
Carla Justice $50.00 4/26/2019 I love you determination Kiki. Your mom would be very proud .
DeAdra Estelle $50.00 4/25/2019 Your mom is so proud of you and with you all the way!!
Anne Calabro $100.00 4/25/2019 With love
Nimrod Ginsburg $195.00 4/24/2019 Go Kiki!! Good luck with the training!
Hannah Mombach $15.00 4/24/2019
Ken Peacock $27.50 4/24/2019 Be strong!
Kelsey Carlson $26.25 4/24/2019 The Kangaroos send their love <3
Anonymous Donor $1,500.00 4/24/2019
Lia Calabro $50.00 4/23/2019 Love this. Go Kirstin!!!! Sending love.
Gerald Pruitt $100.00 4/23/2019 Aunt Gayle & Uncle Jerry - You go Girl !!!
Landsey Dinnin $100.00 4/22/2019
Justin Davis $100.00 4/22/2019
Amy Middleton $25.00 4/22/2019 You go girl!!! She has always been so proud of you and Sean
Grandpa Lewandowski $200.00 4/22/2019 That was a beautiful piece of writing. Love and Good Luck.
Sara Licata $25.00 4/21/2019 You got this! Sending love!
Joanne Mowery $10.00 4/20/2019
Julie Bush $100.00 4/20/2019 So proud of you, Kirsten! You’ve got this!
Donna Curiak $27.50 4/20/2019
Hans Erni $25.00 4/20/2019
Kaye Hooks $250.00 4/20/2019 Go Kirstin! You’ve Got This!
Johnny Campbell $100.00 4/19/2019 Cancer SUCKS !!!
* offline donation