Jared Clark

Jared
Clark

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TotalRaised

$5,700

MyGoal

$2,500


Goal Progress
228%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Vintage Park Half Marathon, 5K, 1K
 Houston, TX
April 9, 2017

I run to find a cure for GAN, the fatal disease my fraternal twin brother and little sister both have.

Donations2Date: $5,700

Donor Donation Amount Donation Date Comment
Bayou City Half Marathon $700.00* 4/12/2017 Congratulations and thank you for participating in the Bayou City Giving Challenge.
Anonymous Donor $2,500.00* 3/23/2017
Anonymous Donor $2,500.00* 3/11/2017
* offline donation