Jared Clark

Jared
Clark

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TotalRaised

$23,700

MyGoal

$8,000


Goal Progress
296%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

The Woodlands Marathon, Half, 5K and 2K
February 27 - 28, 2015
 The Woodlands, TX
My twin brother Justin (age 14) and little sister Lexi (age 9) both have GAN.  I am running to raise money to raise awareness and money for a cure. 

Donations2Date: $23,700

Donor Donation Amount Donation Date Comment
The Woodlands Marathon Management $3,000.00* 3/13/2015 Congratulations and thank you for participating in The Woodlands Marathon Charity Challenge.
GTM Payroll $15,000.00* 1/26/2015
Richard Faux $200.00* 12/31/2014 Good luck cousin!
Rich Clark $500.00* 12/22/2014 Good luck. Hope you have better weather than when we came to visit and watch you in the Houston 1/2
Sara Morgan $5,000.00* 11/4/2014
* offline donation