Jared Clark

Jared
Clark

View Profile


TotalRaised

$6,952

MyGoal

$5,000


Goal Progress
139%
Make a Donation

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Memorial Hermann Sugar Land Triathlon
June 22, 2014
 Sugar Land, TX
I realize that many of you already sponsored me for my 1/2 Ironman race and I am very grateful.  However, the race to find a cure has not ended so I am once again asking for your help. Remember, all of the donations are tax deductible so if you gave for my 1/2 Ironman that was in 2013, this is a new year.

This will be my 3rd year to do this race.  I have also done Andy's Youth running camp.  While I might be a little tired after finishing this race, this is nothing compared to what my twin brother Justin and little sister Lexi are going through.  I know that I will catch my breath after just a few moments, Kids with GAN end up needing oxygen just for normal breathing. 

Please help us find a cure.  I want them to be able to swim, bike and run just like me. 


Donations2Date: $6,952

Donor Donation Amount Donation Date Comment
Anonymous Donor $50.00 6/26/2014 HOUSTON RACING TRIATHLON CLUB congratulates you on your race!
Finish Line Sports $400.00* 6/22/2014 Congratulations on your second place finish in the FLS Charity Challenge
Sara Binau $1,000.00* 6/21/2014
Margaret McPeak $1,000.00* 6/15/2014
Olivia Golub $520.77* 5/22/2014
Ironman Texas $1,000.00* 5/17/2014
Bellaire Mothers of Multiples $492.15* 5/2/2014
Anonymous Donor $8.00 4/30/2014
Jeff Golub $300.00* 4/27/2014
Tim Evans $100.00* 4/27/2014
Elyse Evans $100.00* 4/27/2014
Julie Barker $100.00* 4/27/2014
Kim Swan $100.00* 4/27/2014
Melissa Johnson $100.00* 4/27/2014
Rannon Teller $1,000.00* 4/14/2014
kevin Block $25.00* 4/13/2014
Heritage Texas Properties $656.00* 3/19/2014
* offline donation