Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide. GAN is an extremely rare and fatal genetic disease. There are only 63 known cases world-wide. The life expectancy for these children is only into their 20's. In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected. Help us raise money to continue our search for a cure for GAN.
I run because my fraternal twin brother and little sister have an ultra-rare fatal genetic disease, GAN.
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