Jared Clark

Jared
Clark

View Profile


TotalRaised

$1,915

MyGoal

$3,000


Goal Progress
64%
Make a Donation

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Oktoberfest Triathlon
 Fulshear, TX
October 9, 2016

I race to try and save my siblings lives. I'm so excited that my sister's (Lexi's) good friend's (Dana's) Mom (Mrs. Malin) is asking people to donate to my page in honor of her 40th birthday!  Thanks for helping us find a cure for GAN.

Donations2Date: $1,915

Donor Donation Amount Donation Date Comment
i Tri Events $200.00* 12/15/2016 Congratulations and thank you for participating in the Cross Creek Ranch i Tri Events Charity Challenge.
Christopher Canonico $100.00* 10/6/2016 Go luck Jared - your godparents are proud of you!
Laurie Briggs $100.00* 10/5/2016
Carolyn Machina $50.00* 10/2/2016
Marilyn Denny $50.00* 9/22/2016
Raymond Cerrone $30.00* 9/18/2016
Andrea Blitzer $50.00 9/12/2016
Heritage Texas Properties $335.00* 8/2/2016
Alpha Omicron Pi $1,000.00* 4/14/2016 2nd payment for Rock On Omicron to benefit GAN
* offline donation