Jared Clark

Jared
Clark

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TotalRaised

$2,925

MyGoal

$10,000


Goal Progress
29%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Memorial Hermann Sugar Land Triathlon
May 3, 2015
 Sugar Land, TX
I'm once again racing to save the lives of my twin brother and little sister and all of the other 51 children/young adults who have GAN.  Please help me as I race for a cure for GAN.

Donations2Date: $2,925

Donor Donation Amount Donation Date Comment
Finish Line Sports $400.00* 5/3/2015 Congratulations and thank you for participating in the Finish Line Sports Charity Challenge.
HHF Square $160.00* 4/22/2015 Square donations from 4/18 and 4/22 at Houston Texans Kids Triathlon and Dinner and Drinks
Scott Hausman-Weiss $30.00 4/15/2015
Sheryl Barrett $30.00 4/14/2015 Brendan is looking forward to his 1st Tri!!
Kathy Kehn $30.00 4/8/2015 Great job, keep up the wonderful work!!!
GE Foundation $2,275.00* 2/20/2015
* offline donation