Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide. GAN is an extremely rare and fatal genetic disease. There are only 63 known cases world-wide. The life expectancy for these children is only into their 20's. In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected. Help us raise money to continue our search for a cure for GAN.
I tri for my fraternal twin brother and little sister who both have GAN.
|Donor||Donation Amount||Donation Date||Comment|
|Bayou City Tri Series||$400.00*||10/17/2017||Congratulations and thank you for participating in the Bayou City Tri Giving Challenge.|
|Nicola Westhead||$50.00||10/1/2017||Jared, good luck and enjoy the event experience, from a trisherpa & triathlete/ironman athlete.... best wishes Nicky & Neil (friends of Yvette)|
|Bank of America Charitable Foundationa||$1,000.00*||6/21/2017|
|* offline donation|