Jared Clark

Jared
Clark

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TotalRaised

$2,550

MyGoal

$2,000


Goal Progress
128%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Kemah Triathlon Weekend Olympic, Sprint & 5K
 Kemah, TX
October 7 - 8, 2017

I tri for my fraternal twin brother and little sister who both have GAN.

Donations2Date: $2,550

Donor Donation Amount Donation Date Comment
Bayou City Tri Series $400.00* 10/17/2017 Congratulations and thank you for participating in the Bayou City Tri Giving Challenge.
Nicola Westhead $50.00 10/1/2017 Jared, good luck and enjoy the event experience, from a trisherpa & triathlete/ironman athlete.... best wishes Nicky & Neil (friends of Yvette)
Anonymous Donor $100.00* 8/3/2017
Lagrone Enterprises $1,000.00* 7/14/2017
Bank of America Charitable Foundationa $1,000.00* 6/21/2017
* offline donation