Jared Clark

Jared
Clark

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TotalRaised

$6,538

MyGoal

$10,000


Goal Progress
65%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Kemah Triathlon Weekend Olympic, Sprint & 5K
April 11 - 12, 2015
 Kemah, TX
This will be my 4th year to go off the boat.  Please consider pledging a $ per mile that I race to save the lives of my brother and sister.  It is a 1500 M swim in the ocean (that's almost a mile), a 26 mile bike and a 10K run.

Donations2Date: $6,538

Donor Donation Amount Donation Date Comment
Onurmark Productions $700.00* 5/4/2015 Congratulations and thank you for participating in the Onurmark Giving Challenge.
Kristine Reistetter $50.00 4/12/2015 You are an inspiration to me, my family, and so many others!
William Sessum $50.00 4/8/2015 Houston Racing Triathlon Club is happy to make this donation and wishes you well racing and raising awareness for Justin's Triumph over GAN. Thank you for being a member of HRTC and an inspiration to many!
Anonymous Donor $1,000.00 4/7/2015
Vicki McGinnis $140.00 4/4/2015 Justin and Lexi, This donation is from Duncan's savings account. He has been saving up money for a while, and wanted to help you find a cure for GAN. We love you!
Stacy Humphries $150.00 4/3/2015 From Stacy, Scott, Jackson & Sam Humphries in honor of Jackson's birthday. Good luck!
Paola Roldan $30.00* 3/28/2015
Square Inc. $408.41* 3/28/2015
M Weber $30.00* 3/27/2015
Idalia Medrano $20.00 3/23/2015 Donation by Bill Rondon. Good luck!
Idalia Medrano $60.00 3/20/2015 Good luck on your race day!
Rocky and Jo Ann lagrone $1,000.00* 3/13/2015 Quarterly Donation - Let's Beat GAN
Adplex Operating Account $2,400.00* 3/5/2015 I grew up with your mom and now work in Houston. So glad we can help your cause.
Jurkowich Trust $500.00* 2/20/2015 At request of Timothy Wilson
* offline donation