Jared Clark

Jared
Clark

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TotalRaised

$3,790

MyGoal

$500


Goal Progress
758%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Katy Half Marathon 5K 1K
 Katy, TX
February 6, 2016

I race to save the lives of my fraternal twin brother and little sister who have GAN.  Please help me!

Donations2Date: $3,790

Donor Donation Amount Donation Date Comment
Onurmark Productions $500.00* 2/9/2016 Congratulations and thank you for participating in the Onurmark Giving Challenge.
Timothy and Carrie McInturf $2,250.00* 2/5/2016
William Gaedje $500.00* 2/5/2016
Timothy and Carrie McInturf $250.00* 1/29/2016
Emily Aldermen $130.00* 1/29/2016
Heritage Texas Properties $160.00* 1/29/2016 Jeans for Genes donation - Let's cure GAN
* offline donation