Jared Clark

Jared
Clark

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TotalRaised

$4,508

MyGoal

$3,000


Goal Progress
150%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Jeff & Brede's Triathlon
 Mary Jo Peckman Park Katy, TX
June 25, 2017

I race to save my fraternal twin brother and my little sister from their fatal disease GAN.

Donations2Date: $4,508

Donor Donation Amount Donation Date Comment
Rick Zachgo $323.00* 6/12/2017
Heritage Texas Properties $430.00* 6/8/2017 Jeans for Genes
Anonymous Donor $105.00* 5/31/2017
GE Foundation $100.00* 5/31/2017 employee match
Jim Randle $250.00* 5/12/2017 Proud of you Jared, Love Grandpa
Greg Hester $500.00* 4/25/2017 In honor of our Escape from Alcatraz Tri (attempt)! Next year is the year!
Andy Drexler $50.00* 4/10/2017
Thomas Spain $200.00* 4/5/2017
Keith Lamoutte $800.00* 4/2/2017
Todd Silaica $1,500.00* 3/1/2017 We are so grateful to have your mom on the HHF board with us! Thanks for helping Hannah and all the kids with GAN
michael O'Toole III $250.00* 3/1/2017
* offline donation