Jared Clark

Jared
Clark

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TotalRaised

$3,336

MyGoal

$1,500


Goal Progress
222%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

2018 HMSA Classical
 Houston, TX
November 26 - December 15, 2017

I race to save the lives of my fraternal twin brother and little sister who have Giant Axonal Neuropathy (GAN).

We are rasing fund to find a treatment and cure of GAN.

Please support me!

Donations2Date: $3,336

Donor Donation Amount Donation Date Comment
HMSA Classical $400.00* 12/15/2017 Congratulations and thank you for participating in the HMSA Classical Charity Challenge.
Kids Triathlon $1,345.00* 11/16/2017
Kate Tambone $200.00* 11/12/2017
Heritage Texas $191.00* 10/16/2017 Jeans for Genes
Maunel Schlinger $1,200.00* 7/4/2017
* offline donation