Jared Clark

Jared
Clark

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TotalRaised

$5,195

MyGoal

$5,000


Goal Progress
104%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Finish Line Sports Turkey Trot
November 27, 2014
 Sugar Land, TX

Andy Stewart, the organizer of the Turkey Trot, means a lot to me.  I did my first adult triathlon on a relay team with my aunt at Try Andy's Tri in 2009. Since then, I have completed over 48 adult running, biking or multi-sport events for a total of 1,018 miles.  I am only 13 yrs old.

I realize that many of you already sponsored me for my 1/2 Ironman race and I am grateful.  However, the race to find a cure has not ended so I am once again asking for your help.  Remember, all of the donations are tax deductible so if you gave in 2013, maybe you will consider giving again in 2014.

While I might be a little tired after running 5 miles, this is nothing compared to what my twin brother Justin and little sister Lexi are going through.  I know that I will catch my breath after just a few moments.   Kids with GAN end up needing oxygen just for normal breathing.

Please help us find a cure.  I want them to be able to swim, bike and run just like me.

Donations2Date: $5,195

Donor Donation Amount Donation Date Comment
Finish Line Sports $500.00* 11/27/2014 Congratulations and thank you for participating in the Finish Line Sports Charity Challenge.
Jane Harper $100.00* 11/23/2014
Jennifer Thrash $50.00 11/22/2014
Allies for GAN Gala $850.00* 11/8/2014 18 people donated $50 each which equaled $1 for each of the adult multi-races that Jared has participated in
Maja Samardzija $40.00 11/7/2014
MVP Healthcare $250.00* 11/6/2014
Dara Browning $100.00 11/3/2014
Barbie Davis $100.00 11/3/2014 You are a courageous and awesome brother, Jared!
Barbie Davis $100.00 11/3/2014 You are a courageous and awesome brother, Jared!
Teresa Bogatto $75.00* 10/24/2014
Quantlab Financial $675.00* 10/22/2014
Anonymous Donor $100.00 10/19/2014 Jared has heart!
Anonymous Donor $30.00 10/19/2014
Girls Scout Troop 20241 $150.00* 10/5/2014
BA MOM $1,995.00* 10/3/2014
ed escobar $30.00 10/2/2014 I wish you luck!!
Thomas Stewart $50.00 10/2/2014 GO MAN GO! BEAT GAN!
* offline donation