Jared Clark

Jared
Clark

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TotalRaised

$5,285

MyGoal

$5,000


Goal Progress
106%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Cypress Triathlon Weekend Youth, Doggie, Sprint
July 26, 2015
 Cypress, Texas
I race to find a cure for GAN, the disease my fraternal twin brother and little sister have.  Please consider making a tax deductible donation to help us find a cure.

Donations2Date: $5,285

Donor Donation Amount Donation Date Comment
Onurmark Productions $700.00* 7/26/2015 Congratulations and thank you for participating in the Onurmark Giving Challenge.
Kids Triathlon Inc. $1,320.00* 5/28/2015 Donation for JT team and volunteers at Kids Tri
Goldman Sachs Matching Gift $1,000.00* 5/20/2015
Bellaire Mother's Of Multiples $1,114.78* 5/15/2015 Partial proceeds from the BAMOM garage sale
Knights of Columbus $1,100.00* 5/5/2015
Amber Carver $50.00* 4/25/2015
* offline donation