Jared Clark

Jared
Clark

View Profile


TotalRaised

$5,500

MyGoal

$5,000


Goal Progress
110%
Make a Donation

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Cypress Triathlon Weekend Youth, Doggie, Sprint
August 3, 2014
 Cypress, Texas

I realize that many of you already sponsored me for my 1/2 Ironman race and I am grateful.  However, the race to find a cure has not ended so I am once again asking for your help.  Remember, all of the donations are tax deductible so if you gave in 2013, maybe you will consider giving again in 2014.

While I might be a little tired after finishing this race, this is nothing compared to what my twin brother Justin and little sister Lexi are going through.  I know that I will catch my breath after just a few moment.   Kids with GAN end up needing oxygen just for normal breathing.

Please help us find a cure.  I want them to be able to swim, bike and run just like me.

 

Donations2Date: $5,500

Donor Donation Amount Donation Date Comment
Onurmark Productions $500.00* 8/3/2014
Shelby Belcher $5,000.00* 6/2/2014
* offline donation