Jared Clark


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Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.


Cypress Triathlon Weekend Youth, Doggie, Sprint
 Cypress, Texas
July 31, 2016

I race to try and save the lives of my fraternal twin brother and my little sister.

Donations2Date: $6,250

Donor Donation Amount Donation Date Comment
Onurmark Productions $400.00* 8/3/2016 Congratulations and thank you for participating in the Onurmark Giving Challenge.
Dan Kratz $50.00* 7/20/2016
Gerald Vinson $500.00* 6/27/2016
Anonymous Donor $5,000.00* 6/20/2016 Hoping for a CURE -
Alan Rossiter $100.00* 6/17/2016
D.B. Childers $100.00* 6/5/2016
merideth Vela $100.00* 6/2/2016
* offline donation