Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide. GAN is an extremely rare and fatal genetic disease. There are only 63 known cases world-wide. The life expectancy for these children is only into their 20's. In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected. Help us raise money to continue our search for a cure for GAN.
I race to help save the lives of my fraternal brother and little sister who both have GAN.
|Donor||Donation Amount||Donation Date||Comment|
|Run Houston Race Series||$800.00*||1/26/2021||Congratulations and thank you for participating in the Run Houston! For A Cause program sponsored by Cypress Running Club.|
|Susan Clouthier||$500.00||11/6/2020||I ran most of that run with you back in 2014, and I am happy to donate to your cause!|
|David Blake||$500.00*||10/27/2020||So proud of you Jared for continuing to help Justin and Lexi!|
|* offline donation|