Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide. GAN is an extremely rare and fatal genetic disease. There are only 63 known cases world-wide. The life expectancy for these children is only into their 20's. In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected. Help us raise money to continue our search for a cure for GAN.
I race to help save the lives of my fraternal brother and little sister who both have GAN.
Donor | Donation Amount | Donation Date | Comment |
---|---|---|---|
Run Houston Race Series | $800.00* | 1/26/2021 | Congratulations and thank you for participating in the Run Houston! For A Cause program sponsored by Cypress Running Club. |
Anonymous Donor | $5,000.00* | 11/15/2020 | |
Anonymous Donor | $3,000.00* | 11/9/2020 | |
Lisa Perrone | $150.00* | 11/9/2020 | |
Heather Burnell | $50.00* | 11/9/2020 | |
Susan Clouthier | $500.00 | 11/6/2020 | I ran most of that run with you back in 2014, and I am happy to donate to your cause! |
Russell Randlr | $260.00 | 11/4/2020 | |
Vicki Mcginnis | $100.00 | 11/4/2020 | |
Anonymous Donor | $570.00* | 10/27/2020 | |
David Blake | $500.00* | 10/27/2020 | So proud of you Jared for continuing to help Justin and Lexi! |
* offline donation |