Jared Clark


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Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.


Cypress Half Marathon, 5K, 1K
 Cypress, Texas
November 12, 2017

I run to raise money to save my siblings.

Donations2Date: $7,800

Donor Donation Amount Donation Date Comment
Bayou City Half Marathon $700.00* 11/16/2017 Congratulations and thank you for participating in the Bayou City Giving Challenge.
Manuel Schillinger $3,000.00* 11/11/2017 From your GAN family in Germany
Manuel Schlinger $4,100.00* 7/4/2017 Thanks for running for all the kids with GAN. Love from Germany
* offline donation