Idalia
Medrano

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TotalRaised

$1,100

MyGoal

$1,000


Goal Progress
110%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

The Woodlands Marathon, Half, 5K and 2K
February 27 - 28, 2015
 The Woodlands, TX

One morning on my way to work, I was very touched by Justin and Lexi's story. That day, Justin and his mom were on the radio speaking about GAN in hopes to raise awareness and funds for this rare disease. Before that day, I had never heard about GAN. I learned that there are 50 kids in the world that have this terrible disease and there is no treatment/cure for it as very little funds/resources are dedicated to it due to the "low" number of patients in the world. As a mom my heart was broken hearing Justin's mom talk about her two children, Justin and Lexi, who have GAN and her hopes that one day their efforts to raise funds/awareness will help find the cure for GAN. In that moment, I started thinking about my son, my nieces and nephews and how my life would be if I were in Justin's mom shoes. I quickly started feeling desperate to help.  I cannot imagine my life without my sweet little boy AndrĂ©s/nieces/nephews nor can I bear the thought of someone telling me that he/they only has "X" day/months/years to live and I have no other choice but to accept it and move on. I kindly ask you to please help me raise funds to find the cure for GAN and give these children a second chance to live!

Thank you!

Idalia

Donations2Date: $1,100

Donor Donation Amount Donation Date Comment
The Woodlands Marathon Management $100.00* 3/13/2015 Congratulations and thank you for participating in The Woodlands Marathon Charity Challenge.
Cristina Basquez $40.00 2/26/2015
Jay Werner $50.00 2/18/2015
Ann Zhu $50.00 2/17/2015 Thank you for your dedication and support. You rock!
Holly Herrera $25.00 2/17/2015 Wonderful cause, Idalia! Good luck!
Kelly Eager $100.00 2/17/2015 You Go Girl !!!
Troy Treat $250.00 2/17/2015
Amanda Morales $50.00 2/17/2015 Good luck on completing this challenge! The world needs more people like you.
Ramiro Juarez $20.00 2/17/2015 Thanks for reminding me! This is an awesome thing you're doing! Thanks for taking on the challenge!! :)
Julie Dollar $30.00 2/12/2015 I am praying for you. God Bless You...
DAVID SCHMIDT $50.00 2/12/2015
Susana Campos $50.00 2/4/2015 My sister, the kindest heart I know.
Cleona Philips $50.00 2/3/2015 Best of luck, Idalia!!!
Norma Dean $20.00 1/25/2015 Go git em girl!
Charity Dillon $50.00 1/20/2015 Good Luck! Have a lot of fun!!
Debbie Cline $20.00 1/20/2015
Sandra Mork $55.00 1/20/2015 Today you are my hero!
Amanda Hays $20.00 1/19/2015 Rock it for the cause! XOXO Amanda
Liliana Trevino $20.00 1/18/2015
Idalia N, Trevino $50.00 1/10/2015
* offline donation