Debra Dees


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Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.


Run Houston! Minute Maid Park 10K, 5K, 1K
April 1, 2017
 Houston, TX

I run for GAN.  I found about the Clark children from a work colleage. 

Donations2Date: $1,575

Donor Donation Amount Donation Date Comment
Bridgeway Run Houston $150.00* 4/5/2017 Congratulations and thank you for participating in the Bridgeway Run Houston! For A Cause.
Patrick Hickok $100.00* 3/28/2017
BlackRock Financial Management $1,000.00* 3/13/2017
Susan King $100.00* 3/11/2017
Lorna Ciancio $100.00* 3/9/2017
Brad Schofield $125.00* 3/6/2017
* offline donation