Debra Dees

Debra
Dees

View Profile


TotalRaised

$50

MyGoal

$1,000


Goal Progress
5%
Make a Donation

MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Run Houston! Minute Maid Park 10K, 5K, 1K
 Houston, TX
March 19, 2016

My co-worker Mindy knows the Clarks and told me about this awesome cause.  Please help us find a cure!

Donations2Date: $50

Donor Donation Amount Donation Date Comment
Bridgeway Run Houston $25.00* 3/22/2016 Congratulations and thank you for participating in the Bridgeway Run Houston! For A Cause.
Shelia Stone $25.00* 2/27/2016
* offline donation