Avery Vondenstein

Avery
Vondenstein

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TotalRaised

$765

MyGoal

$100


Goal Progress
765%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Finish Line Sports Turkey Trot
 Sugar Land, TX
November 24, 2016

I love running for Team Justin's TRIumph! Please consider donating so the kids will GAN wil be able to walk...

Donations2Date: $765

Donor Donation Amount Donation Date Comment
Finish Line Sports $200.00* 11/25/2016 Congratulations and thank you for participating in the Finish Line Sports Charity Challenge.
schuyler Tilly $100.00* 11/12/2016
Shen Transportation $465.00* 11/9/2016
* offline donation