Afton
Widdershins

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TotalRaised

$4,813

MyGoal

$1,000


Goal Progress
481%
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MyReason

Hannah's Hope Fund

Welcome to Team Hannah's Hope Fund and Justin's Triumph over GAN. We raise funds to support the development of a treatment and cure for Giant Axonal Neuropathy (GAN), and to be the resource for doctors, scientists and families world-wide.  GAN is an extremely rare and fatal genetic disease.  There are only 63 known cases world-wide.  The life expectancy for these children is only into their 20's.  In 2015, the FDA approved an experimental trial -- so far, 2 patients have been injected.  Help us raise money to continue our search for a cure for GAN.

 

Memorial Hermann Sugar Land Triathlon
June 22, 2014
 Sugar Land, TX

Justin is a friend of my brothers, they are in the same class at their school.  My mom and brother have started doing triathlons, and the Sugarland Triathlon will be my first full triathlon, before this I have done a few as a member of a relay team. 

Giant Axonal Neuropathy, or GAN, is a fatal genetic disease affecting less than a 100 kids worldwide.  There are scientists working on a cure, but they need our help.  Please support my first full triathlon and help Justin and Lexi live the long full life that everyone deserves. 

Donations2Date: $4,813

Donor Donation Amount Donation Date Comment
Anonymous Donor $50.00 6/26/2014 HOUSTON RACING TRIATHLON CLUB congratulates you on your race!
Finish Line Sports $200.00* 6/22/2014 Congratulations on your fourth place finish in the FLS Charity Challenge
Bellaire Swim team $638.05* 6/20/2014
Bellaire Bake sale $585.00* 6/17/2014
Troy McPeak $100.00* 6/15/2014
OnUrMark Race $200.00* 6/2/2014
Burger Operator LLC $749.84* 5/23/2014
Kids Triathlon $650.00* 5/15/2014
Mark Twain $340.00* 5/14/2014
Lagenia Clark $1,300.00* 5/7/2014
* offline donation